Monday, January 23, 2012

A busy 24

The last 24 hours have been super busy for our little man. Here's what he's been up to:

Smiling. Oh yes, my friends, that sweet smile is winning nurses over by the dozens. The whole pediatric team rounded on him this morning instead of half the team ONLY because they were told he was such a cute baby and had an amazing smile :)


Sleeping sideways in bed.
Being weaned from his nasal canula and breathing room air.
Sleeping off surgery.

Being transferred to the floor in a little red wagon. I was shocked that it happened so soon, but all the doctors have been very impressed with his recovery so far. He looked so darn cute in that wagon! I've gone through a little bit of shock from not having a personal nurse, but it has its perks also (like not as many beeps at night!)



T came to visit and took a ride of his own around the floor (pediatric unit). He tried to talk Mema into letting him take it into the elevator and home with him, but it didn't work!


Being cute.

And being disconnected from lots of lines, meds and tubes. The chest tube even came out this afternoon which is awesome because it was extremely painful for him and making him so sad.

Drinking Mama's milk straight from the source. I'm hoping that now that the chest tube is gone this will be more successful and less painful.

Rekindling his romance with his thumb. I'm so glad they've reunited!


Watching movie after movie on his personal big screen TV. Such the life!

Wearing a diaper on his foot so that he doesn't kick out his only remaining IV (fat chance, but we're trying).

Playing with Mr. Elephant and Scout that brother brought from home.

Peacefully snoozing. Not that he needs any extra beauty sleep--I think he might just be the most beautiful baby I've ever seen.

Saturday, January 21, 2012

Pictures of the boy

It's been another long day, but it was a good day. Everett is recovering well from surgery. His heart was playing some games with us this morning, but they discovered that the pacing wires were actually adding to his arrhythmia (irregular heart beat). Once they reset them, the irregularity stopped. The pacing wires are there just in case his heart needs a boost. I was told today that he was actually on a pacemaker for about 15 minutes after he came off of bypass because his heart was not wanting to work properly. I am so grateful that it worked yesterday, and I am so grateful that this mornings episodes were nothing more serious.

His blood pressures have regulated and he was extubated and put on a nasal canula. His main issue today was pain management and hunger. He was on morphine but it wasn't working, and it was making his poor little face itch like crazy. He was thrashing with pain and arching his back. He has lost his voice (could be temporary, could be more permanent) and his crying is so sad. They switched his pain medication (and gave him some benadryl) and he seems much more comfortable.

He was not able to have milk until late this evening. They started giving him pedialyte this afternoon but that was not satisfying and everytime I held him (yes, I got to hold him twice today!) he would thrash his body around in frustration. I can only imagine that it must be very hard for him to understand what's going on, and why his mother won't feed him. It was also very hard for me. I wanted so badly to love on him, but today he did not want me.

Tonight after he ate a bottle of mama's milk he slowly fell asleep. He looked so comfortable and peaceful, and was still sleeping when I left. It made me feel better about the day. Recovering from surgery is really difficult for all parties involved, I guess I had forgotten how stressful and intense it is. Please continue to pray for our family and for the little man.

Here is our last two days in pictures:
Everett preparing for surgery. He couldn't eat before surgery and was SO hungry...but of course had a big smile on his face! We can't wait to see that precious smile again. And PS--Evie makes hospital gowns and booties look so, way cute!

This is right before the anesthesia team took Evie for surgery. I was a wreck, not going to lie. I've felt an incredible amount of peace surrounding Everett's surgery, but that moment was not pretty. I'm glad that James was there to help me be strong. How sweet is that thumb-sucking baby?


And six very long hours later our baby met us in the Cardiovascular Intensive Care Unit (CVICU). The waiting game was made much easier because of a few friends that work at the hospital and decided to drop in to see how we were. Other than that, I passed the time watching Kelly Ripa and pumping like mad. Evie looked beautiful and perfect, although I am perfectly aware that I'm a very biased mama!


Our Heart Hero.


Everett has been an exclusive thumb-sucker for the last month or so, but luckily he welcomed the binkie back into his life today! At least while his thumbs are not accessible. His arms are in those cute casts because the little rascal is trying to pull out all of his lines!


We tried to add a little bit of color to his bed. That blanket was given to him by a sweet old man that volunteers at the CVICU. I made him that sign this morning. I wanted a picture of his smiling face present so that the doctors, nurses and everyone near him can know his true nature. Again, I can't wait to see that sweet little smile.


I also put some other pictures by the bedside, just to give it a little love! Daddy and Evie.


Me and Evie. This is about as close as I could get without him smelling my being and screaming his head off!


Talmage came to visit his little brother today. He's been having a hard time with everything. When we got home to tuck him in last night he was upset that Evie was not with us. He kept saying, "Don't take me and leave me." again and again. He thinks we just left Everett somewhere and he's afraid we're going to do the same thing to him. Luckily, my amazing mom has been here to take care of him, and today we took him to the hospital so he could better visualize what was going on. It was hard for him, but also good. The first thing he said in a hushed voice was, "Oh no, baby Evie is sick." We explained things to him again, had him kiss Evie's head and gently touch his fingers, and then Daddy took T to see the trains by the heart center. Overall I think the visit was a success.



Daddy holding our sweet little man. He is such a strong boy and we couldn't be prouder of him.

Friday, January 20, 2012

Evie Ev.

Surgery went well today.


Dr. Reddy was able to repair the coarctation and transverse arch, as well as fix the VSD with four little stitches. We learned today that Evie has another heart defect--supra mitral membrane and an abnormal mitral valve. They were able to peel away the tissue of the mitral membrane (also called mitral ring) but we will have to continue watching the mitral valve. Let's hope and pray that it isn't an issue for a long, long time (like, never maybe?!)


It was a long day and an emotional day. Evie's surgery was what our surgeons called "textbook," which is amazing, but recovery is always a beast. Everett's stats have been all over the board, but by late tonight he was more stable. We are all exhausted, so he is snoozing at the hospital and Jim and I just got home to take a little nap (you know, like a night-time nap!)


We are grateful for surgeons, doctors, nurses and so many other wonderful hospital personnel that have dedicated their life to healing our son. We are grateful for family and friends that have been so loving, giving and thoughtful. Oh the stories I have told my journal about YOU! Thank you everyone. And we are grateful for a loving Heavenly Father that has blessed us with an overwhelming sense of peace and calm today. We couldn't have gotten through the day without it.


I'll post pictures of Everett and more updates tomorrow. Goodnight.

Thursday, January 19, 2012

In the meantime

Since Everett's surgery was postponed to Friday, we had two days to spend with family that had come into town. Here are some of the things we've been doing (and about a million and a half pictures of Evie).


T entertaining Grandma, or Grandma entertaining T? Maybe both.



Owl-man getting in all the swings he can.

Pizza My Heart with the fam.


Papa & GG with the boys.


We've gone on lots of walks. T is so sweet and always has at least one hand on Ev. He's such a good big brother.


We also took a few walks down memory lane. This is where Papa lived when he went to Stanford.


The Wiggy men in front of their bff, the library.




The Big Wigs and the Wiglets in front of the Memorial Church.


He, as always, has been full of smiles...


...and those smiles tripled when he tried out some apple juice for the first time (actually it was pedialyte. it's the only thing he can drink before surgery so I wanted him to try it out. he LOVED it!)



I.Love.Him.A.Lot.And.More.


Mema got here this afternoon, and T is definitely looking forward to his time with her.


And may the force be with her, cuz this kid is wild with energy!

Tuesday, January 17, 2012

We've been bumped...

Pre-op was all morning. Six hours of Everett being poked, examined, and us being told every last detail of the surgery, the risks and the recovery. The doctors and nurses we met were amazing, but as you can imagine the endless appointments were exhausting. We left this afternoon with our heads wrapped around what would happen tomorrow. We felt at peace.


BUT
At 4 pm we received a call from our surgeon's PA telling us that he had bad news. Everett's surgery was being bumped to Friday because a baby needed emergency surgery tomorrow morning. My stomach turned--for us and for them. This waiting game has been excruciating for me. This may sound weird but I was actually glad the surgery day was upon us so that very soon it would be behind us. To many of you two days probably doesn't sound like a lot, but to me thinking/obsessing/worrying about this surgery for two more days sounds like forever. At the same time, only five months ago we were the family bumping another child's surgery so that our son could receive emergency heart surgery. That is a scary place to sit. Everything is so uncertain, fresh and raw. The world spins and you have no control. I ache for this family, and we are definitely praying for them. I really want to know who they are and I really wish we could help--but we'll leave that in the Lord's hands.

In the meantime, thank you for everyone's prayers, thoughts and love. We will keep you updated with all things Evie very soon!

Monday, January 16, 2012

Riding in Style


Maybe I'm totally behind on the times, but had any of you ever seen one of these sweet babies before? This, my friends, is a shopping cart that has a TV screen inside the little car. Those red car grocery carts that were once the apple of T-Man's eye are now old news my friends. Now, children can drive the car while simultaneously watching Handy Manny. T had a blast, was totally silent the whole trip and when it was time to go asked me, "Mommy, don't you need to go to another store now?" Yes, they are kind of over the top, but with results like that, I'm sold!

Sunday, January 15, 2012

Stanford Basketball

The men's basketball team had two games this week and since they will probably be the only games we will be able to attend all season we went to both. On Thursday night, Stanford played Utah and I made sure we all wore Cardinal and NOT red! I was relieved and elated that Stanford won, although we didn't stay until the end of the game. T and his little buddies were SO darling--dancing to the music, cheering for the players and waving those pom-poms. It was such a nice, relaxing, fun evening with good friends...and Utah lost, so it was great!


Evie is the BEST sports baby ever. He sat on Daddy's lap for almost the whole game and watched the players run back and forth. We went to another game on Saturday (which Stanford also won, ps) and Evie even took his afternoon nap while all of the cheering and whistles and band-craziness took place. This baby is golden.